Uchenna Donald Okoli

Take action & change a life!

About

A middle-aged man enjoyed a weekend with his family but subsequently discovered a small, painless lump on his neck, initially thought to be minor. Despite taking antibiotics prescribed by his GP, there was no improvement. After undergoing several tests, he was diagnosed with a Neuroendocrine Tumor (NET), a type of cancer challenging to diagnose due to its diverse symptoms and tendency to spread quickly before detection.

Uchenna suffered different illnesses after his discharge in May 2022, from terrible cough to shortness of breath, fluid in the lungs, loss of appetite, loss of weight, loss of taste, diarrhoea, joint pain, frequent urination, oedema, and fatigue.

His health deteriorated more as he continued to lose more weight. Unfortunately, Uchenna died at the prime age of 50 on 23rd April 2023.

- Support funding for NET research that helps understand the disease discover how new treatment options can improve patient outcomes, and possibly find cures.
- Support the patients of NET and their families emotionally and financially throughout their NET cancer journey.
- Raise awareness about the risk factors, symptoms, and prevention strategies to empower individuals to take proactive steps for their health.

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Weʼre raising £10,000 to Help Launch Uchenna D. Okoli (UCHEMOKOLI) Foundation.

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Neurone Endocrine Tumour?

0.5% to 2%

of all diagnosed cancers worldwide.

40 and 60 years old

NETs can occur at any age, but they are most commonly diagnosed in individuals between these ages

65% to 95%

Survival rates for NETs vary depending on factors such as the tumor's stage, grade, and location with 5-year survival rate

50%

Patients with NETs present with metastatic disease at the time of diagnosis, often involving regional lymph nodes, liver, and/or distant sites.

A Neurone Endocrine Tumour (NET) is a rare type of cancer that arises from cells of the neuroendocrine system, which is responsible for producing hormones and regulating bodily functions. These tumors can develop in various organs throughout the body, including the pancreas, gastrointestinal tract, lungs, and other organs where neuroendocrine cells are present.

NETs are often classified based on the location in which they originate and the types of hormones they produce. Some NETs are non-functional, meaning they do not produce hormones and may not cause noticeable symptoms until they grow large enough to press on nearby organs or tissues. Functional NETs, on the other hand, produce hormones that can cause specific symptoms related to hormone excess or deficiency.

Treatment for NETs depends on several factors, including the tumor's size, location, grade, and whether it has spread to other parts of the body. Treatment options may include surgery, chemotherapy, radiation therapy, targeted therapy, and somatostatin analogs, depending on the individual case and the specific characteristics of the tumor. Early detection and treatment are important for improving outcomes and quality of life for individuals with NETs.